I just wanted to say thank you for praying, especially for wisdom and direction for the doctors...Emily's surgery has been cancelled for now! Things are falling into place - Emily's cardiologist is working to find a doctor so we can get a second opinion on how to best treat her knee arteriovenous malformations (avm). We're feeling frustrated as we'd like to get this taken care of, but we're also feeling relieved as well!
Thanks for your love and prayers!
About Me
- Denise
- In 1992 we were blessed with our miracle, Emily. She was born with a congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). Basically, she was born with only half of her heart. I (her mom) created this blog as a means to keep our family and friends updated on her progress. It is also my prayer that Emily’s story may be an encouragement to other HLHS families, and an awesome testimony to God! She is a very sweet and happy teenager whose strength and faith are an inspiration to me - I hope that you too are encouraged by Emily's journey!
Emily and her big brothers
Waiting to see the Dr. - texting!
4 comments:
Hello and THANK YOU!
I'm so glad to see a teenager with HLHS!! I have an 18 month old daughter who has HLHS and I always look for encouraging stories of older children, teens and adults with HLHS. Thanks for sharing Emily's story!
Bethany
We will continue to pray for Emily.
We love you guys!
Sorry to hear about about the delay.. I know it is frustrating and you want it to get done..but it sounds like the Lord has his hand in finding another opinion.. Stay srong in the Lord and knowing so many are praying for strenght and wisdom..
Love,
THE GUCWAS
I, too, wanted to say thank you for sharing Emily's story. We have an eleven month old son with a single ventricle, so he is treated as if he has HLHS. It's so nice to read about a teenager with HLHS! Thank you for sharing, and we'll definitely add Emily and the rest of your family to our prayer list.
Big heart hugs and prayers,
Shannon Carter
www.carolinacarters.blogspot.com
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