Seventeen?

Emily recently had a birthday....Wow, I can't believe that our baby is 17 now! She has been feeling pretty good. Her oxygen saturation levels are a bit higher. We laugh because when a friend of ours was encouraging us to move back to Illinois he joked that Illinois air has more oxygen in it than Indiana, well....we've moved back to Illinois and her sats are higher, hmmm? - haha - whatever the case, we'll take it! They are mid to high 80's while on 2L of oxygen and low to mid 80's off oxygen. September 8 she had a cardiology appointment. The echocardiogram looked good with good heart function so Dr. kept everything the same and wants her to return in 3 months. We're still waiting to hear from Cincinnati Children's Hospital about the labs that were done, or what the plan to take care of the AVMs in her knees and wrist will be, but her knee continues to heal everyday :)