Monday, June 29, 2009

Orthopedic appointment

Emily had an appointment in Chicago to check on her scoliosis. Thankfully, it was a very uneventful trip - we like those!! Since the curve had not changed at her last visit 6 months ago, and she is not having any symptoms, they decided not to do an xray this time. In and out in a little over an hour....unheard of :)

Wednesday, June 10, 2009

Cincinnati appointment

Emily had an appointment in Cincinnati yesterday – it was a long day but everything went well. I really don’t know what to report as I left there a bit more confused myself. Hopefully, while we wait for additional info from the doctors, I'll be able to process it all....? I feel very confident with Emily in their care but as in Dr. Adams’ words yesterday (words we’ve heard over and over) “Emily is very complicated". They have been consulting with Boston Children’s Hospital about things, and need to re-connect with Emily’s home cardiology team as they are considering the prospect of surgically removing the AVMs now. She has an appointment July 1st for more labs and to see another hematologist. Thanks for checking in on us and please pray for the doctor’s wisdom in how to best treat our Miss Em!

P.S. Fun part of the day...we stopped on the way home to see friends that live in Indy. It was great to catch up and helped to break up the drive as well!!